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| Tuesday, October 3, 2023 | ||
| 8:00 am | Welcome and Remarks | John C. Morris, MD Friedman Distinguished Professor of Neurology and Co-Director, Knight ADRC, Washington University School of Medicine Beverly Wendland, PhD Provost and Executive Vice Chancellor for Academic Affairs, Washington University in St. Louis |
| 8:15 am | Conference Overview | John C. Morris, MD Friedman Distinguished Professor of Neurology and Co-Director, Knight ADRC, Washington University School of Medicine |
| 8:30 am | 2018 Workshop In Review and Next Steps | Andrea Denny, JD, LCSW Instructor of Neurology; Leader, Outreach, Recruitment, and Engagement Core, Washington University School of Medicine Special Guests – Beverley Foster and Rev. C. Jessel Strong, African American Advisory Board members |
| 9:00 am | Describing Social Identities, Characteristics of Individuals and Populations, and Communicating About Health Disparities | Ganesh Babulal, PhD, OTD Principal Investigator of The DRIVES Project and ARCHES, Associate Professor of Neurology, Washington University School of Medicine Jason Flatt, PhD, MPH Assistant Professor, School of Public Health, University of Nevada, Las Vegas |
| Session One: Evidence-Based Strategies | ||
| 9:30 am | Addressing Structural and Research Team Barriers to Recruiting Marginalized Populations | Consuelo Wilkins, MD, MSCI Professor of Medicine and Senior Vice President and Senior Associate Dean for Health Equity and Inclusive Excellence, Vanderbilt University Medical Center |
| 9:50 am | Insights on Inclusive RER: Early findings from the FOREVER Study | Jonathan Jackson, PhD Assistant Professor of Neurology, Massachusetts General Hospital, Harvard Medical School |
| 10:10 am | Break | |
| 10:30 am | There is No Quick, Easy, or Cheap Way to Recruit Older African Americans to Aging and Brain Health Research | Mark Gluck, PhD Professor of Neuroscience and Public Health and Director, Aging & Brain Health Alliance, Rutgers University—Newark |
| 10:50 am | Research Characterizing Health Equity via Social Determinants (ARCHES): Notes from the Field | Darrell Hudson, PhD Associate Professor, Brown School of Social Work, Washington University in St. Louis |
| 11:10 am | Culturally-informed Community-engaged Efforts to Improve Inclusion and Engagement of Underrepresented Ethnocultural Populations in the Alzheimer’s Disease Neuroimaging Initiative 3 Study: The ADNI Diversity Task Force | Godfrey Coker, MBA, MPH, MS Senior Project Manager, Engagement Core (Fordham/Mt. Sinai), Alzheimer’s Disease Neuroimaging Initiative (ADNI) |
| 11:30 am | Evidence-Based Strategies Panel | Moderator: John C. Morris, MD Friedman Distinguished Professor of Neurology and Co-Director, Knight ADRC, Washington University School of Medicine Panelists: Godfrey Coker, MBA, MPH, MS Mark Gluck, PhD Darrell Hudson, PhD Jonathan Jackson, PhD Consuelo Wilkins, MD, MSCI |
| Noon | Lunch | |
| Session Two: Social Determinants of Health | ||
| 1:00 pm | Session Introduction and Opening Comments | Moderator: Crystal Glover, PhD Associate Professor, Departments of Psychiatry and Behavioral Sciences (and) Neurological Sciences, Rush Medical College |
| 1:10 pm | Cognitive Aging in Context: Utility of Measuring Social Determinants in the UDSv4 and Beyond | Megan Zuelsdorff, PhD Assistant Professor, School of Nursing, University of Wisconsin-Madison |
| 1:30 pm | Measures of Social and Structural Determinants of Health (SSDOH) in an Alzheimer’s Disease Research Center | Shana Stites, PsyD, MS, MA Assistant Professor, Department of Psychiatry University of Pennsylvania |
| 1:50 pm | Considerations for Constructing Social and Structural Determinants of Health Research Batteries | Marissa Streitz, MSW, LCSW Research Project Manager, Knight ADRC, Washington University School of Medicine |
| 2:10 pm | Social Determinants of Health Panel and Q&A | Moderator: Crystal Glover, PhD Associate Professor, Departments of Psychiatry and Behavioral Sciences (and) Neurological Sciences, Rush Medical College Panelists: Marissa Streitz, MSW, LCSW Shana Stites, PsyD, MS, MA Megan Zuelsdorff, PhD |
| Session Three: Community Engaged Strategies | ||
| 2:30 pm | Using Community Engagement to Build Partnerships to Enhance Research Participation | Gina Green-Harris, MPH Director, University of Wisconsin School of Medicine and Public Health Center for Community Engagement and Health Partnerships (CCEAHP) University Wisconsin – Madison |
| 2:50 pm | COEQUAL: Building Community Bridges for Equitable Alzheimer’s Disease Research | Joyce Balls-Berry, PhD, Associate Professor of Neurology, Leader, Health Disparities and Equity Core, Knight ADRC, Washington University School of Medicine |
| 3:10 pm | Break | |
| 3:30 pm | Engaging Participants & Communities in the Story of Research | Raina Croff, PhD Associate Professor of Neurology and Co-Lead of the Outreach, Recruitment, and Engagement Core, Oregon Alzheimer’s Disease Research Center, Oregon Health & Science University |
| 3:50 pm | Community Engaged Strategies Panel | Moderator: John C. Morris, MD Friedman Distinguished Professor of Neurology and Co-Director, Knight ADRC, Washington University School of Medicine Panelists: Joyce Balls-Berry, PhD, Raina Croff, PhD Gina Green-Harris, MPH |
| 4:15 pm | Importance of and Lessons Learned with Meaningful Engagement of Asian American, Native Hawaiian & Pacific Islander Communities in Alzheimer’s Disease and Related Dementias Research | Van Park, PhD, MPH Professor, Community Health Systems, School of Nursing, University of California, San Francisco |
| 4:45 pm | Day One Wrap-up | Sanjay Asthana, MD Associate Dean for Gerontology, Professor and Head, Division of Geriatrics & Gerontology, Director, NIA/NIH Wisconsin Alzheimer’s Disease Research Center, Duncan G. and Lottie H. Ballantine Endowed Professor of Geriatrics, University Wisconsin |
| 5:00 pm | Close | John C. Morris, MD Friedman Distinguished Professor of Neurology and Co-Director, Knight ADRC, Washington University School of Medicine |
| Wednesday, October 4th, 2023 | ||
| 8:00 am | Welcome | John C. Morris, MD Friedman Distinguished Professor of Neurology and Co-Director, Knight ADRC, Washington University School of Medicine |
| 8:05 am | Session Introduction and Opening Comments | Moderator: Carey Gleason, PhD, MS Associate Professor of Medicine, Division of Geriatrics, School of Medicine and Public Health Wisconsin ADRC Leader, Inclusion of Underrepresented Groups Core, University of Wisconsin-Madison. |
| 8:15 am | Strengthening American Indian, Alaska Native, Native Hawaiian and Pacific Islander Participation in Alzheimer’s Disease Research [Only Dr. Boyd’s talk is available for viewing.] | Dedra Buchwald, MD, Professor, Elson S. Floyd College of Medicine, Founding Director, Institute for Research and Education to Advance Community Health (IREACH), Washington State University Amanda Boyd, PhD Co-Director and Associate Professor, Institute for Research and Education to Advance Community Health, Elson S. Floyd College of Medicine, Washington State University |
| Session Four: Hispanic/Latino Outreach | ||
| 8:45 am | Leveraging National Infrastructures Via an Intervention Co-Led by Latino Partners to Increase Latino Representation in Clinical Trials on Dementia | María Aranda, PhD Margaret W. Driscoll/Louise M. Clevenger Professor in Social Policy and Administration and Executive Director, USC Edward R. Roybal Institute on Aging, University of Southern California Scarlet Mendez, BSN Research Assistant, University of California, San Francisco School of Nursing |
| 9:15 am | Engaging Communities of Hispanics/Latinos for Aging Research: The ECHAR Network | Luis Medina, PhD Associate Professor, University of Houston, Department of Psychology |
| 9:35 am | The importance of Recruitment of Underserved Populations in Alzheimer’s Disease Research | Sid O’Bryant, PhD Professor, Family Medicine and Osteopathic Manipulative Medicine, and Executive Director, Institute for Translational Research, University of North Texas Health Science Center |
| 9:55 am | Breakout Session Overview | John C. Morris, MD Friedman Distinguished Professor of Neurology and Co-Director, Knight ADRC, Washington University School of Medicine |
| 10:00 am | Break | |
| 10:15 -11:10 am | Voices from the Community Breakout Sessions | Topic One: How can minoritized communities and ADRD research groups work together to raise awareness of new advances in Alzheimer disease and promote access to them? Room 301 – Monica Willis Parker, MD Associate Professor of Medicine, Department of Neurology, Director, Outreach Recruitment and Education Core, and Director, Minority Engagement Core, Goizueta Alzheimer’s Disease Research Center Emory University; Scribes: Selena Washington and Emma Swinford Room 303 – David Johnson, PhD Professor in Neurology and Director, UC Davis Alzheimer’s Disease Center-East Bay, UC Davis School of Medicine; Scribes: Nelly Joseph-Mathurin and Jennifer Fish Topic Two: How can we help ensure that the healthcare providers and systems that serve minoritized communities will have access to and knowledge of how to use the most current tools and treatments to improve dementia outcomes? Room 305 – Facilitator: Jessica Mozersky, PhD Assistant Professor of Medicine and Co-Leader, ORE Core, Knight ADRC, Washington University School of Medicine Scribes: Karin Meeker, PhD and Nicole McKay, PhD Room 308/10 – Facilitator: Matt Gabel, PhD Professor of Neurology, Washington University School of Medicine Scribes: Carol Sher, MSW and Araya Assfaw, PhD, MPH Topic Three: What would make ADRD research participation meaningful for historically minoritized groups? Seminar Room A – Facilitator: Douglass Petty, PhD St. Louis Community Leader and Chair, Knight ADRC African American Advisory Board, Washington University School of Medicine Scribes: Nicole Elmore, ANP-BC and Pete Millar, PhD Seminar Room B – Facilitator: Mwiza Ushe, MD, MA Professor of Political Science, Washington University in St. Louis Scribes: PeChaz Clark and Abdallah Eteleeb, PhD Topic Four: What can ADRD research centers do to support historically minoritized communities? Great Room – Facilitator: Beverly Berry, MA, CHES, Director, Diversity, Equity & Inclusion, Alzheimer’s Association Scribes: Marilyn Wilson, MSW and Miguel Minaya, PhD Auditorium – Facilitator: Krista Moulder, PhD Professor of Neurology and Executive Director, Knight ADRC, Washington University School of Medicine Scribes: Dotti McDowell, MA and David Bradford |
| 11:15 am | Reports from Breakout Sessions – Main Auditorium | |
| 11:45 am | Conference Wrap-up | Sanjay Asthana, MD Associate Dean for Gerontology, Professor and Head, Division of Geriatrics & Gerontology, Director, NIA/NIH Wisconsin Alzheimer’s Disease Research Center, Duncan G. and Lottie H. Ballantine Endowed Professor of Geriatrics, University Wisconsin |
| 12:15 pm | Closing Remarks | John C. Morris, MD Friedman Distinguished Professor of Neurology and Co-Director, Knight ADRC, Washington University School of Medicine |