Clinical Core Codebook

Note that the Knight ADRC visit packet (referred to as the Initial Subject Protocol or “ISP”) is composed of two parts: the Uniform Data Set (UDS) and the Washington University Memory & Aging Project (MAP) data.  As with most longitudinal studies, the clinical data collection instruments have changed over time.


Annotated ISP, UDS version 3 (data collection 3/16/2015-present); initial and follow-up


Annotated ISP, UDS version 2 (data collection 9/1/2005-3/15/2015)


2005 Clinical core code book (data collection, pre NACC, 8/1979-8/31/2005)


For further information on the UDS variables, please consult the National Alzheimer’s Coordinating Center (NACC)